Webinar for PATIENTS with physician expert on Thymoma and Thymic Carcinoma
May is the Thymic Malignancy Awareness Month, TMAM, each year TUTOR propose a webinar in English for patients and their families, with physician experts in Thymic Tumors, Thymoma and Thymic Carcinoma
Patients with a Thymic Epithelial Tumor (TET), thymoma or thymic carcinoma, face several problems such as having limited information about the disease or reference centres; difficulty in making a timely and appropriate diagnosis, resulting in delayed or inadequate treatments; limited access to appropriate clinical expertise and limited access to available treatments.
In order to provide information about therapies, specialized centers, and diseases, since 2022 , in May during TMAM (Thymic Malignansies Awareness Month) TUTOR organizes a WEBINAR in english for patients with physicians expert in Thymic Tumors.
Webinar aims are
-Facilitate the distribution of knowledge and information about therapies, specialized centers, and diseases.
–Share experiences with other patients and caregiver from all around the world.
-Enhances and strengthens the connection between patients and the clinical and scientific community that are experts in these rare tumors and related pathologies.
-Encourage the patient to take on a proactive and responsible role in managing the disease, making decisions, and adhering to therapy by promoting their centrality and participation(empowerment and engagement).
In the webinar are involved:
- TUTOR (rare thoracic tumors) is the Italian non-profit organization for patients with thymic tumors and mesothelioma and is E-PAG (European Patient Advocacy Group) collaborating closely with physicians to enhance access to care and foster research.
- PATIENTS AND CAREGIVERS, from all over the world, that share their experience to promote a patient’s engagement for a better quality of life
- PHYSICIANS from
- EURACAN ERN, https://www.euracan.eu/, is a network of European Healthcare Providers with expertise in the management of rare adult solid cancers as thymoma and thymic carcinoma. Thanks to EURACAN’s structure, clinicians and researchers across Europe can share expertise, knowledge and resources.
- ITMIG, https://itmig.org/, is the international scientific organization that promotes the advancement of clinical and basic science pertaining to thymic tumors.
Past Events
